Showing posts with label end-of-life. Show all posts
Showing posts with label end-of-life. Show all posts

Monday, September 16, 2019

Let's talk about death...

Grape leaves: the cycle of life
A few months ago, I signed up for a dinner party where death had a seat at the table. You could even say death was the guest of honor. 

Talking about death isn't something most of us who grew up in western culture are comfortable with. Sadly, because not having those oh-so-important conversations can make loss even more devastating. 

And not only do we not want to talk about it, many of us don't have cultural rituals to guide us when loved ones die. In some cases where we do, those rituals we grew up with don't fit anymore. 


This isn't a post about grief; I write about that enough. This is a reminder to all of us to do the things that must be done—the hard things, those caring things that make life easier for those left behind when we, too, leave this mortal plane. 

#DeathDinners

My dinner with death was last Saturday, and yes, it was fascinating, and yes, death was nearly the sole topic of conversation.  

Based around 'death over dinner' events (#deathdinner) started by University of Washington professor Michael Hebb in 2013, the dinners grew from a graduate course called Let's Have Dinner and Talk about Death. In 2018, Hebb authored the best-seller, Let's Talk About Death Over Dinner; from this website, you can also learn about hosting your own dinner with death. Why over dinner? As Hebb notes, the dinner table is the most forgiving place for a difficult conversation.

The dinner I attended was hosted by former lawyer now end-of-life coach Ann Forrest Burns. (Do check out her site; it's fabulous and you can learn some things. Do it; it's safe to look.) There were six of us around the table, and we started our conversation by sharing the first memory we had of a significant death. 

The impact of loss

My dad was my first significant death, but not a memory of my own as he died shortly after I was born. But my mom mourned his death until she, too, left the mortal plane when I was 38. That was big. 

Other losses left an impenetrable mark at an early age. My caregivers and my reasons-for-being all died within a few short years of each other: first, my aunt, who died when I was 8; she said "goodbye, daddy" to my grandfather as she was taken from the house on a stretcher—and then never came home. My grandpa left me the following year, and three years later, my grandmother. I was 12, and her death signaled to me that anyone I cared about—or who cared for me—would leave. Hence my modus operandi for the next couple of decades—being left became an expectation, and I looked for love in all the wrong places. 

Since then there were countless others—cousins, friends, pets, and other family members, few from a 'ripe old age' and largely from lifestyle choices. When someone in my family lives to 80 or 90, it's cause for celebration. There are few of them. 

As a little girl, I attended many funerals because of a large, extended family, and while uncommon today, when I see a funeral procession drive by, I still get choked up. I was often in the family car leading the way. 

Death upon death

Mortal death isn't the only death, though. My mom died an emotional death after my aunt died, closing off and shutting down—that, too, left an indelible mark. And when those we care about lose their quality of life, that may be a series of deaths, as they lose the ability to do what they love. Often, this is a prolonged death. 

Planning ahead 

Death can break apart families. Pre-planning can make a difference. 

I have a Canadian friend who works in the industry and helps people pre-plan. She's been highly successful financially not because she's great at sales, but because she's truly passionate about helping people. Death is hard enough on those left behind; when we plan ahead so others don't have to, we lessen their suffering. She knows this at a deep level.  

Talk with those you love about your needs and desires. Do you want your life sustained if it means you're hooked up to tubes, incubators, or various other machines? There are legal documents that leave no question, and it's best to work with a professional (you can find them in all price ranges). A health directive, or living will, is a must-have to ensure you're taken care of the way you want to be when you can't make decisions for yourself anymore. And don't be smug; this can happen at any time—an accident, or an illness that comes on suddenly. 

When the time comes: 
  • How do you want to symbolize your time on earth? 
  • How do you want your family taken care of? 
  • Who do you want to benefit from any means you may have left, or any of your prized belongings? 
  • Do you care if there's a service, and if yes, how it's done? 
  • Cremated or buried? Where? We even have a choice of 'green' services now. 
You may think these aren't important, but when the time comes, they're important to those still standing, and the fewer decisions they have to make, the easier it is during a time that's anything but easy.  

Be curious

On Saturday, we also played the game Morbid Curiosity. It's a combination of trivia questions and conversation starters. While some of the trivia answers are humorous, many inform or help you think about options to consider. Conversation starters were either thought-provoking or entertaining. If you need help getting the party started, this game will break the ice. 

Meaningful death

Our lives have meaning, not just for us but for those who care about us. Our death will have meaning, too. Let's help those we leave behind with those most difficult decisions, so they don't have to when their wound is wide open. 

I'm grateful that death doulas are becoming a thing. It's a much-needed service to help us make choices that are meaningful while we still can, and help us navigate the complex industry that death has become. 

Don't wait

While my mom talked about her own death and did some of the pre-planning (thanking lucky stars for the People's Memorial Association here in Washington), I was less-than-impressed with our family's funeral home, the place where I spent enough of my childhood to still have strong memories. If only there were death doulas, or end-of-life coaches, then. It would have saved confusion, frustration, and heartache. 

Don't wait. This is far too important, and it's never too soon. Talk, plan, or find some help. Or host a #deathdinner of your own. It really isn't morbid. We had great conversations, plenty of laughs, and some good food, too. Here's the link again, just in case it helps. 


If you like this post, or this blog resonates with you in any way, please feel free to share it, comment below, or send me a message. I'm also available for one-on-one coaching—you can find me here.


Wednesday, June 8, 2016

When a parent dies...

The life cycle of a yellow rose. 
Sometimes, life kicks you in the ass, makes you re-evaluate and re-assess, see things, people and places differently...

My father-in-law, Del, took his last breath just after midnight east coast time. My partner Forrest was there, along with other members of the family. Del was diagnosed with throat and lung cancer earlier this spring, but didn't share that news because he was caring for his long-time partner, Dotty, who had Alzheimer's and preceded him in death by just a few weeks.

Del and Forrest's mom Okay divorced when Forrest was just four-years-old. While he and his siblings spent their summers with their dad in the north Georgia mountains, as an adult, Forrest wasn't close to him, despite a solid resemblance, a shared countenance and caustic wit. Del wasn't much of a 'dad' to his first family, never really taking responsibility. When still married to their mom, they moved a lot, as Del was a prospector looking for gold from the deep southeast to northern Alaska. The family story goes: he finally found it in the tourists who pass through Helen, Georgia, the country's first gold rush town. There he opened Duke's Creek Mines, a gold and precious gem panning business, along with the adjacent Heidi Hotel. I met him on two occasions, one of which was a long weekend visit many years ago with several shared meals and conversations. It was clear he was a man of few words, significant intellect, strong opinions, good humor, and a resilience about him that makes his death at 71 seem implausible.

Death is a funny thing no matter who it is that passes from this mortal coil. Funny in that it's the only real constant other than change (even taxes can be evaded...) but yet, it's something most of us don't plan for, don't really talk about, nor even actually expect, for ourselves or others. The death of a parent is often, but not always, devastating. Yet no matter the circumstances, it's one of the more significant changes each of us will experience in our lives; with it comes a different level of complexity, especially if the relationship was complicated or after a lengthy illness.

I'm not presumptuous enough to think I understand someone else's experience, and I certainly can't know what Del's family will go through. But I do know the death of a parent changes us, even if the relationship is strained. We are different. It has the capacity to bring families closer together or sever ties. It can shift our priorities and show us what's important. Mostly, it tends to bring us up-close and personal with our own mortality, our own shortcomings, our own unmet desires and regrets. It can show us, and those close to us, parts of ourselves and each other that weren't previously visible -- like the tenderness Del showed Dot, and unfamiliar or long-denied or hidden feelings that bubble from below the surface.

When my mom died, time stopped. I felt like I had a tattoo that read "mom died" on my forehead, as if this was a rite of passage that had to be marked. In between waves of grief, there's shock (at least, for a death unexpected), which is a useful thing as there are immediate decisions to be made and a laundry list of things to do. It's after all the 'things that must be done' are behind us that the reality sets in and processing begins.

Unless you're firmly in denial and prone to stuffing feelings, that's where introspection really kicks in. I went through many of the grief stages (although I find the traditional definitions of each stage lacking): anger, denial, remorse, sadness, and finally came to acceptance, despite a lingering void. But what often isn't among those official stages about grieving is relief. With her death, my mom was released from her suffering and sadness.

Grief and the time it takes to move through it -- and we do move through -- is different for all of us, but it's something we'll all experience. And from the other side of loss, I know it's worth the journey. Painful experiences can suck beyond comprehension, and many of us try to avoid them, or at least, the feelings that accompany them.


Dive in...  

Without these challenging times, we'd never experience nor understand the full spectrum of love and joy, gain empathy, nor even enjoy those quiet moments of contentment. And I believe those who left their imprint -- good and bad -- are with us always, whether from a spiritual, soul connection or a practical, in-our-DNA perspective; they help us become our best selves, even if it's "don't do as I did".

Our parents give us life, and while the best of them give us tools for living and help us become healthy, functional adults, some of us get there despite our families. And that's OK. By the time we reach a certain age, no matter our upbringing, we can be grateful, thank them and even acknowledge them for their own shortcomings. We can embrace ourselves and cherish our relationships from a place of compassion, connection and love that we may not have been able to before, even as we pine for what might have been had those relationships been different. And with their transition from this earthly plane, we can take deeper meaning from the lessons they proffered, perhaps unwittingly, and honor them by living our own lives fully, and being present to our daily experience.

Del never knew what great kids he had. Every one of them is a talented, creative, funny and extremely capable adult. I don't know if he had the depth of understanding to feel that loss. That might be the saddest thing of all.


Tuesday, February 26, 2013

Of cats and kids, and big decisions

Nightmare, or in this pic,
Kitty Dirty Paws
I don't have children - this is largely intentional. I'm not convinced I'd have been a good parent, given my own troubled youth and lack of good parenting models, nor did the option ever really present itself. I honestly can't remember if I wanted to have children. And my clock just didn't tick.

Many women grow up with this path in mind, and if not in mind, certainly in body. They know this is their destiny, and their bodies (or circumstances) tell them when it's time. Other than Barbie and a baby doll when I was very small, I don't remember even playing with dolls. I preferred my Matchbox cars, Tonka truck and a few stuffed animals. Barbie didn't have kids... she was all style and no substance - well, and maybe relationships. There was Ken, after all, and the other 'adult' dolls - and whatever personalities I assigned them from the recesses of my imagination. OK - so that's a stretch... It was all about the clothes. And the shoes. Oh, and the corvette... and so on.  So no, no dolls, and no kids. I don't think playing with dolls is an actual indicator, but my guess would be that it's a clue. 

At some point, I consciously decided I would not have children. I don't remember when. I know I was adamant about this by my mid-30s, but I'm sure I was somewhat cognizant of this much earlier. I don't have regrets. As I age, I sometimes engage in self-doubt and ask myself if I did the right thing, and the answer is always the same - it was the right choice for me. Thankfully, there is no longer a stigma around being childless, and I now have many friends, older and younger, who are also intentionally without children.

All that said, as Forrest's mom OKay pointed out, I am very nurturing. Until recently we had three cats - essentially my fur kids. I am connected to these little creatures in ways I wouldn't have imagined. We lost Motormouth to renal failure on Christmas eve, 2010, and Photon to lymphoma the following September. Nightmare, initially my mom's cat, is still with us, and at 14, pretty spry. And last week he was diagnosed with early stage renal failure. While I am told not to panic, I'm a little panicky and pretty heartbroken.

My little white furball still looks and acts like a sprout - he is playful, feisty, curious, active, eats well... and recently started drinking a lot of water. I didn't pick up on it initially, but it finally clicked that he was drinking more than normal, and by that point, for a couple of months. So I scheduled the vet appointment, hoping for an all's well call.

But instead the next day's call made my heart sink. Now, after several calls and email messages, a lot of my own research, and email messages to pet food companies and pet websites, I am feeling more hopeful. Cats can live a long time with proper care, even with failing kidneys.

Proper care, in my mind, is a blend of vet recommendations, what I learn from my own exploration, and gut instinct. For example, I'm not very interested in feeding my cat, who gets pretty decent grain-free food, a prescription diet from one of the major pet food companies. I feel about them the way I do about big agriculture and food producers. I will explore how to balance his protein needs with the right types of food, and supplement with vitamins and Chinese herbs. Acupuncture is another option, but I'm concerned that the trip in the car, unfamiliar surroundings, and new people would be more stressful and negate any benefit. Managing kitty stress is also part of the care plan. We'll see. Maybe they make home visits?

It's interesting to ponder end-of-life decisions. We do this for our pets, but only in a few states can we (legally) make choices for ourselves. We're not yet near this time for Nightmare, but the news brought it to mind. Quality of life is essential. My neighbor, just a few years shy of 100, was ready to go for a while before it was finally her turn. She was tired. And done. She had experienced all of life, her friends and family were gone, and her mobility was compromised. And my friend Stacey, at 49, left two young boys behind with no plan because it didn't occur to her or anyone else that she might die so young. Her brother had to make a choice when his options were limited. It begs the question: Are you ready? Just in case?

I don't look forward to making choices like these - for Nightmare or anyone. But if his quality of life ebbs to the point of pain and suffering, I will carefully calculate our options. Motormouth's last few days will stay with me for a long time to come. I don't think living beings should expect any less than dignity, comfort, peace and love when that time comes.

Many of us are able to choose whether or not to have children. What would it be like if we could choose how or when we die? We have a family joke about going out for that "last cup of tea" when we've outlived our usefullness. What if that were really possible? It's for the living we grieve, yes?